6 thoughts on “Spread The Facts

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    Thank you for this awesome campaign to raise awareness andctherefore hopefully get the necessary changes needed to eliminate chronic lyme disease. I wouldnt wish it on my worst enemy. Ive had it for several years because took way too long to get diagnosed. It is a horrific disease that changes your whole life and becomes the focus of your life trying to get well.
    There is no cure just hope that you csn return to normal functioning but uou can never be rid of it. I am thrilled to see Dr Oz and all those who are participating in getting out the word. Everyone should b educated on this. It is no longer only in new england and is spreading fast. Get on board we can do this together! Take a big bite out of Lyme. Save lives. Tell all your friends!!

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    I have had chronic Lyme Disease since I was bout 12 yrs old an it’s been a long hard road livin with this an it makes me so sick but I’m a fighter. It drains me of my energy but it can never take my smile away

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    My husband and I are thinking about moving back to Florida. I grew up in Miami; my husband is from Buenos Aires, Argentina. We are presently living in Bronxville, NY after being here for over 30 years. I was bitten in 1979 in a woodsy area of Scarsdale, NY and finally diagnosed in 1991 by an immunologist from Mt. Sinai in NYCity. I am still symptomatic and under care of a LLMD. My primary concern is moving back to an area which I felt would not be Lyme literate nor Lyme friendly. I believe my fears are unwarranted. I am particularly concerned about allying myself with a physician who is affiliated with ILADS.
    if our move in our retirement thoughts finally comes to pass, we are thinking of moving into the Vero Beach, Delray Beach or even over to the Sarasota coastline area. We have a two yr plan before final retirement sets in. My current status is relapsing lyme and Dr. H. in Hyde Park, and my local internist are discussing IVIG therapy. I would like to sign up for your online newsletter and be current with and receive all forthcoming events, news, etc. Is this a possibility?
    Many thanks,
    Sincerely,
    Sue Borton,
    Bronxville, NY
    sueborton@yahoo.com

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    We need you. I need your help. It is very difficult to participate in campaigns when I can’t even get out of bed. #babesiacrueldisease #chroniclymedisease took away my life. Treatment with #drjosephjemsek 6 years thusfar.

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    I’ll do what it takes. #southcarolinasucks. #nolymetreatmentinSC. How can I start #chroniclymediseaseawareness in SC??

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    My daughter and I have lived the scare of lymes disease. Without ever finding a tick and or rash they were very hesitant to test for lymes’ disease . It was not until she ended up getting admitted to the hospital after our visit to the eye dr . At that point she was diagnosed with this awful disease in the form of memingitis and a sudo tumour.( increasing tension interior of your cranium (intracranial) from the irrelevant) She had been complaining of headaches for about 3 months and some were extreme. I was told it was pre-teen hormones and did nto seem to be so concerned.
    They performed a spinal tap and kept her admitted for about 10 days. This was a very scary experience. I thank the lord that she has recovered and it appears that at this point – (4) years later she does not have any long term affects such as the aches and pains that most people accure . This disease can kill and is very random in the form of how it attacks your body . I hope that there is a full cure someday and we don’t have to keep on seeing people suffer for so long.
    #lymediseasekills #lymediseaseawareness #curefor lynesdisease

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